Resources

Alzheimer’s Disease

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  • Jenny’s Diary: A Resource to Support Conversations about Dementia with People who have an Intellectual Disability

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    Visual story developed to help people with intellectual disabilities understand dementia. Includes resources to support families and caregivers in having conversations about dementia.

  • A Change in Behavior in a Person with Down Syndrome and Alzheimer’s Disease

    Article that describes changes in behavior that may occur in a person with Down syndrome and Alzheimer’s disease, possible causes, and strategies to address them.

  • Improving Alzheimer’s Diagnosis and Care for Adults with Down Syndrome Virtual Forum

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    Webinar recording featuring a panel of physicians and family members discussing diagnosis and treatment barriers adults with Down syndrome and Alzheimer’s disease may face.

  • Let’s Talk About Dementia: A Booklet About Dementia for Adults with Down’s Syndrome

    Visual booklet about dementia for people with Down syndrome who are developing dementia and/or who have a loved one with dementia.

  • NTG – Early Detection Screen for Dementia (NTG-EDSD)

    Questionnaire to track behavioral, functional, and medical changes as people with Down syndrome age. Helpful for establishing a baseline and recording changes over time….

  • Reducing Risk of Getting Alzheimer’s Disease

    Article that identifies lifestyle and health strategies that promote healthy aging and may potentially delay or prevent Alzheimer’s disease.

  • Average Age of Diagnosis of Alzheimer’s Disease in Adults with Down Syndrome

    Article that shares the average age of diagnosis of Alzheimer’s disease in people with Down syndrome and explains when symptoms typically develop.

  • Alzheimer’s Disease Story

    Visual stories to help individuals with Down syndrome understand what Alzheimer’s disease is and how it may affect someone in their life.

  • Alzheimer’s Disease Prevention and Healthy Aging in People with Down Syndrome Webinar Recording

    Recording of a webinar on steps that individuals with Down syndrome can take to promote healthy aging and possibly decrease the risk of Alzheimer’s disease.

  • Loss of Skills and Alzheimer’s Disease in People with Down Syndrome

    Article describing how Alzheimer’s disease is one of many possible causes of skill loss in individuals with Down syndrome. Emphasizes the importance of comprehensive assessments..