Resources

National Down Syndrome Society

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  • Navigating Behavior Guide

    Guide that explains underlying causes of behavior, importance of interpreting behavior as communication, and strategies for addressing challenging behaviors.

  • CARE Down Syndrome

    Free clinical education and resource hub to support primary care professionals in delivering high-quality healthcare to adults with Down syndrome.

  • Enhancing Women’s Health: Key Insights from the Primary Care Provider’s Guide to Women’s Health and Down Syndrome Webinar Recording

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    Recording of a webinar about women’s health topics including menstruation, PMS, HPV vaccines, cancer, pelvic exams, birth control, and menopause.

  • Primary Care Provider’s Guide to Women’s Health and Down Syndrome

    A guide to help primary care professionals address the unique health needs of women with Down syndrome, including menstruation, menopause, cancer, and other topics.

  • Practicing Inclusive Mental Healthcare of Individuals with Down Syndrome

    Guidebook with tools, resources, and strategies for mental health professionals of individuals with Down syndrome.

  • Down Syndrome Clinic Lists

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    Links to lists of clinics that specialize in health needs of people with Down syndrome in the United States.

  • Aging and Down Syndrome: A Health & Well-Being Guidebook

    Guidebook with information on what to expect as adults with Down syndrome age. Topics include healthy lifestyle habits, common medical conditions, and future planning.

  • End-Of-Life and Down Syndrome Guidebook

    Link to guidebook developed to help individuals with Down syndrome and their families plan for and make decisions about aging and end-of-life.

  • Regression & Down Syndrome

    Resource with an overview of Down syndrome regression disorder (DSRD), including symptoms, testing, and treatment. Includes a symptom checklist and resources.

  • 321go! Guide

    Program developed by the National Down Syndrome Society to equip individuals with Down syndrome with knowledge and skills to improve their health.