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  • Improving Alzheimer’s Diagnosis and Care for Adults with Down Syndrome Virtual Forum

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    Webinar recording featuring a panel of physicians and family members discussing diagnosis and treatment barriers adults with Down syndrome and Alzheimer’s disease may face.

  • Getting a Swallow Study Visual

    Visual that explains what happens during a swallow study (e.g., barium swallow study or videofluoroscopic swallow study).

  • Hernias in People with Down Syndrome

    Article that explains what hernias are, common symptoms, risks, and treatment considerations for individuals with Down syndrome.

  • Down Syndrome-Autism Connection

    Link to the website of a nonprofit organization that provides support, education, and resources related to co-occurring Down syndrome and autism.

  • Breast Cancer Screening for Women with Down Syndrome

    Article about factors for women with Down syndrome to consider about breast cancer screening tests such as mammograms.

  • Let’s Talk About Dementia: A Booklet About Dementia for Adults with Down’s Syndrome

    Visual booklet about dementia for people with Down syndrome who are developing dementia and/or who have a loved one with dementia.

  • Urinary Incontinence

    Article about urinary incontinence (“accidents”), causes in people with Down syndrome, at-home strategies for avoiding accidents, and information about when to seek medical evaluation.

  • Let’s Talk About Death: A Booklet About Death and Funerals for People with Down’s Syndrome

    Visual booklet about death, funerals, and coping with grief for people with Down syndrome.

  • When Staff Members Leave Story

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    Visual story about why staff members may leave, how we might feel, and strategies we can use to cope.

  • NTG – Early Detection Screen for Dementia (NTG-EDSD)

    Questionnaire to track behavioral, functional, and medical changes as people with Down syndrome age. Helpful for establishing a baseline and recording changes over time.