CARE Down Syndrome

CARE Down Syndrome is a free clinical education and resource hub developed by the National Down Syndrome Society (NDSS) to support primary care professionals in delivering high-quality healthcare to adults with Down syndrome.

Description from NDSS

Research shows that about 5% of adults with Down syndrome have access to specialty Down syndrome healthcare clinics. As a result, most adults rely on PCPs who may have had limited opportunities to receive condition-specific training. CARE Down Syndrome was created to bridge this gap through:

Research shows that about 5% of adults with Down syndrome have access to specialty Down syndrome healthcare clinics. As a result, most adults rely on PCPs who may have had limited opportunities to receive condition-specific training. CARE Down Syndrome was created to bridge this gap through:

All course materials and clinical reference articles have been reviewed and endorsed by the Down Syndrome Medical Interest Group-USA (DSMIG-USA) and the American Academy of Developmental Medicine & Dentistry (AADMD).

Brian Chicoine, MD (lead author and reviewer), Hannah Graham, MD (author and reviewer), and Katie Frank, PhD, OTR/L (author), from the Adult Down Syndrome Center, contributed to the development of CARE Down Syndrome.