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  • Navigating Behavior Guide

    Guide that explains underlying causes of behavior, importance of interpreting behavior as communication, and strategies for addressing challenging behaviors.

  • Today & Tomorrow: A Guide to Aging with Down Syndrome

    Link to Canadian guide on health of adults with Down syndrome including information about unique aging considerations, dementia, and more.

  • Jenny’s Diary: A Resource to Support Conversations about Dementia with People who have an Intellectual Disability

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    Visual story developed to help people with intellectual disabilities understand dementia. Includes resources to support families and caregivers in having conversations about dementia.

  • Bereavement Booklet for Families

    Booklet for families and caregivers about supporting a person with Down syndrome who is grieving.

  • Primary Care Provider’s Guide to Women’s Health and Down Syndrome

    A guide to help primary care professionals address the unique health needs of women with Down syndrome, including menstruation, menopause, cancer, and other topics.

  • Practicing Inclusive Mental Healthcare of Individuals with Down Syndrome

    Guidebook with tools, resources, and strategies for mental health professionals of individuals with Down syndrome.

  • When Down Syndrome and Autism Intersect (2nd Edition)

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    Link to the 2nd edition of a book for parents and professionals on the dual diagnosis of Down syndrome and autism.

  • Aging and Down Syndrome: A Health & Well-Being Guidebook

    Guidebook with information on what to expect as adults with Down syndrome age. Topics include healthy lifestyle habits, common medical conditions, and future planning.

  • End-Of-Life and Down Syndrome Guidebook

    Link to guidebook developed to help individuals with Down syndrome and their families plan for and make decisions about aging and end-of-life.

  • 321go! Guide

    Program developed by the National Down Syndrome Society to equip individuals with Down syndrome with knowledge and skills to improve their health.