Improving Alzheimer’s Diagnosis and Care for Adults with Down Syndrome Virtual Forum
September 26, 2024
On September 26, 2024, a virtual forum on Alzheimer’s disease and Down syndrome was held.
Title: Improving Alzheimer’s Diagnosis and Care for Adults with Down Syndrome: Opportunities for Families and Clinicians
Description: This virtual forum featured Dr. Brian Chicoine, Medical Director of the Advocate Medical Group Adult Down Syndrome Center; Dr. Seth Keller, neurologist and co-president of the NTG; and Amy Kolb-Tucker, Special Olympics Area Director and parent to 43-year-old Katy who has Down syndrome and has been diagnosed with Alzheimer’s. They discussed the barriers that adults with Down syndrome may face in Alzheimer’s diagnosis/treatment, such as lack of access to knowledgeable healthcare providers. They also provided practical tips and opportunities for families and healthcare providers to navigate and begin to address those barriers.
Host organizations: Stanford University School of Medicine, Stanford Alzheimer’s Disease Research Center (ADRC), and National Task Group for Intellectual Disabilities and Dementia Practices (NTG).
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