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Global Medical Care Guidelines for Adults with Down Syndrome

December 30, 2022

GLOBAL Medical Care Guidelines for Adults with Down Syndrome. Evidence-based medical recommendations to support healthcare professionals. Available in English, Japanese, Albanian, Swahili, Italian, and Spanish. Additional resources include checklist, behavior toolkit, celiac disease toolkit, and diabetes toolkit.

On October 20, 2020, the Global Medical Care Guidelines for Adults with Down Syndrome were published in the Journal of the American Medical Association (JAMA) in an article called “Medical Care of Adults with Down Syndrome: A Clinical Guideline.” They provide evidence-based recommendations to support healthcare providers in their care of adults with Down syndrome.

Links to the guidelines and other resources are available on the Global Medical Care Guidelines for Adults with Down Syndrome page on the Global Down Syndrome Foundation website. Global requires users to provide their name and email address in order to download the documents. 

The guidelines are available in:

  • English
  • Spanish
  • Japanese
  • Italian
  • Albanian
  • Swahili
 

Resources include: 

  • Full Guidelines
  • Family-Friendly Guidelines
  • Checklist
  • Diabetes Toolkit
  • Celiac Disease Toolkit
  • Behavior Toolkit
  • Article in JAMA
 

The guidelines address:

  • Behavior
  • Dementia
  • Diabetes
  • Cardiovascular disease
  • Obesity
  • Atlantoaxial instability (AAI)
  • Osteoporosis
  • Thyroid
  • Celiac disease
 

Access Medical Care Guidelines for Adults 

 

Information about medical care for children and adolescents with Down syndrome can be found in Health Supervision for Children and Adolescents with Down Syndrome from the American Academy of Pediatrics.

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